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Association of Bladder Exstrophy Community (ABC)
Contact
Thomas Exler email: TEExler3@aol.com
email: admin@bladderexstrophy.com
website: http://www.bladderexstrophy.com
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The ABC started at least 15 years ago to support families and friends. This association is based in the United States of America and has members throughout the world including Australia. Their website is comprehensive, especially in the area of Bladder Exstrophy Syndrome, with a glossary of terms, research and development.
The ABC has a conference in the USA every second year. Go to the ABC Learning Center for a wealth of information. |
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Hypospadias & Epispadias Association
(HEA)
Contact
Chris Arnold, President
Billy Deagan, Executive Director
email: membership@heainfo.org
address: P.O. BOX 475, Wauconda,
IL, 60084, USA
website: http://www.heainfo.org
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HEA is based in the USA and has a conference every second year when it is not the ABC year for a conference. This association specialises in Hypospadias and Epispadias.
The HEA has many useful links on their website. Check out the following and their many other pages of useful information:
Medical Resources
Recommended Reading/Viewing
Glossary of terms
Register and login to the HEA message board/forum for interactive communication. |
