Resources

We recommend you check out the resources available from the Association for Bladder Exstrophy (ABC) and the Hypospadias and Epispadias Association (HEA) in the USA.

Both associations have an impressive range of resources for various age groups to buy and for free with membership.

The associations also have copies of the papers presented at their previous conferences that may be relevant and of interest to you.

Association of Bladder Exstrophy Community (ABC)

Contact
Thomas Exler email: TEExler3@aol.com
email: admin@bladderexstrophy.com
website: http://www.bladderexstrophy.com

The ABC started at least 15 years ago to support families and friends. This association is based in the United States of America and has members throughout the world including Australia. Their website is comprehensive, especially in the area of Bladder Exstrophy Syndrome, with a glossary of terms, research and development.

The ABC has a conference in the USA every second year.

Go to the ABC Learning Center for a wealth of information.

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Hypospadias & Epispadias Association
(HEA)

Contact
Chris Arnold, President
Billy Deegan, Executive Director
email: membership@heainfo.org
address: P.O. BOX 475, Wauconda,
IL, 60084, USA
website: http://www.heainfo.org

HEA is based in the USA and has a conference every second year when it is not the ABC year for a conference. This association specialises in Hypospadias and Epispadias.

The HEA has many useful links on their website. Check out the following and their many other pages of useful information:

Medical Resources